the gift

Every year, on my birthday, I check to make sure it’s still there.

Every year, it is, and my heart is both torn and comforted.
It was the first thing I ever knew, and over the years has become a part of me. I think that without it, I would be lost.

Every year, for my birthday, I take it, wrap it up in pretty paper, and give it back to her, but I could do that a thousand times and it would still be here inside of me. It makes me who I am… but I do wonder what it would be like if it were gone.

Inside is the very first thing I was ever given, and something I carry with me even today. Even more today.

I didn’t have any words to voice what I felt, couldn’t make sense of it as the heartbeat and smell and warmth that let me feel that I would be safe was ripped away and I was torn out of the arms that for fifteen minutes kept the cold of the world away forever.

I would take it out, put it in a small box, wrap it up in pretty paper and hand it to her. Inside is something bigger than she is or can ever be, but something that over years and years made me stronger than I ever could have otherwise been. It takes a lot to hold the pieces together for so long.

She would open it up every year on my birthday.
Inside would be the baby’s pain.

As They Have Done For Me (A commitment to myself.)

I had left phone messages, sent handwritten letters & cards, and still hadn’t heard anything back from her. For the first few months I wasn’t concerned. With the exception of a brief time shortly after we met, she’s always been inconsistent in getting back to me, and is a complete Luddite when it comes to anything beyond phone or cards. It’s frustrating, but something I’ve learned to tolerate. It’s just who she is, and I don’t have much of a choice but to accept it.

I had spent 25 years of my life searching for my Birth Mother, not knowing if she was even alive, and with each year that passed growing more anxious. I would vividly imagine the first time we met only being able to lay flowers on her grave – so this, this was small.

Only a couple years before there were times she would call me out of the blue, just to check in, say hi – and eventually would always return a phone message. My first birthday after we had met, she sent five cards, each addressed & in their own envelope, and even though the frequency of our communication got less & less after that, she never failed to at least send a beautiful card for my birthday. In these she would fill me in on the latest in her life, and it was always the same thing. She worked in a hospital lab, came home, watched TV for a bit before bed, & on Sundays, usually went to a local restaurant, a place called Lauren’s in Boonville. She frequently closed the notes saying “I need to get a life!” Helpless to do anything about it, reading that always hurt.

It had been months since I’d heard anything from her. When my birthday came & went without a card, I started to get worried. The messages I left & cards I sent increasingly got more desperate, eventually flat out asking if she wanted me in her life anymore. Maybe this was all a mistake. Maybe she decided that she didn’t want to be reminded of that time in her life, being shipped from Colorado to San Diego to have me, away from the humiliation that a pregnant & unwed child would have brought to her family in the ‘60’s. Maybe… hell, I didn’t know what to think. I was terrified that after over half my life searching for & finding my Mother, I had again lost her.

Still no reply.

All I had were letters and phone messages to send, and nothing came of those. I thought about taking the train up there, but the station was much too far away. Bus, same thing. If she didn’t want me in her life anymore, I could somehow learn to live with that – but I needed to hear it from HER, I needed to know why before I could begin to accept it, to heal as well as I could. With each day that passed, each letter or card that went unanswered, my heart collapsed a little more. Did she leave me again? What’s wrong with me, why can’t I fix it, why can’t I see it? What did I do wrong this time? I just needed to know. I needed answers. Maybe with answers I could work on what’s wrong with me.

I had been journaling, trying to make sense of it. I posted some of what I wrote just to get it away from my mind, and people were nice, reached out in words of concern. They were appreciated, but words didn’t help anything.

Then, on one of my posts, a friend offered a ride. I figured it was a nice gesture, but more than likely wouldn’t happen. People say a lot of things, promise the world, but at the end of the day, seldom come through. I didn’t let myself get excited, but figured I’d at least play along.

If this happened, he would have to drive down from Sacramento, pick me up, and then drive the 2.5 hours to my Mother’s house so we could catch her after she got home from work at around 5:30 – then after surprising her by knocking on her door and figuring out what the HELL was going on, would have to do the whole trip back to Sac. I saw how absurd that was, and although I needed answers, him doing this – for *me* – was just ridiculous, and far too much to ask or hope for. It was constantly on my mind to cancel just for his sake – but Kitty never faltered, never gave a hint of reluctance. It was going to be more than a 400 mile round trip for him, and all he wanted was for me to get the answers I needed from my mother. He also said he liked the idea of “sand-bagging” her for answers, and even if it was a last-stand, at least what needed to be done could be done.

When he showed up at my door that Saturday after our planning, I decided that maybe it was time for me to accept that he was serious. This was happening.
OhShitOhShitOhShit.

With all the apprehension and anxiety I put myself through, it turned out to be surprisingly unapocalyptic. As I walked up to her door I could see her through the large living-room window, sitting in her chair & watching TV. I watch her as she walks over to the door, unable to see me yet.
“Hi mom.”
“Ohhh, HI, Casey! What a surprise!”
She motions for me to come in.
“What the hell is going on? Have you gotten my letters? Messages?”
“Yes, I’m so sorry…”
“But you didn’t even take a minute to answer them? ANY of them? Not one?”
“I meant to, but…”
“But what, you couldn’t be bothered? Do you have the slightest idea what I’ve been going through? I think I made it pretty fucking clear in the letters.”
“I know, I kept meaning to, but it just got harder as time went on and…”

Looking at my Mother’s face, seeing *my* face in hers & seeing the regret and apology, the anger starts to subside but I’m not letting her off that easy. I still don’t know what I need to know.
“DO you want me in your life anymore? If not, I need to know why – what I’ve done or if it’s just your trip, if this is too much for you, do you still want me?”
“Of course I do. I’m so sorry, I… I’m just bad at it, bad at staying in contact. I promise I’ll try to get better Casey, I *do* love you and want you in my life, and I’m sorry I put you through that, I didn’t mean to…”

We’re both sitting now, the anger & dread nearly all washed from me, and I’m explaining to her like she’s a three year old what it did to me, what she did, how she made me feel. I know she understands, but I don’t want her to forget. I don’t want her to take this lightly, and especially don’t want her to ever do it again. Hoping I got my point across well enough, the conversation moves into seeing how she’s doing, how the hips that have both recently been replaced are feeling, and knowing Kitty & I need to get back on the road soon. I go outside & invite him in, and shortly after we’re back on the road, leaving my Mother to her grey, empty life & TV.

As we walk the short distance to his car I turn to see her sitting again, and vow to myself that somehow, I’ll figure out a way to get a car, get up here at least a couple times a month to either take her on small adventures or just stay the weekend and help her clean up the weeds in her back yard. I think of planting a garden for her, how nice that would be. She’s mentioned that she would really like to get a dog someday. So many things I could do for her, if only I could get up here.

What Kitty did for me that day, I will never forget.
I do what I can for people to try and help, but it’s frustrating being so limited. I can only do small things: take dog food down to the homeless kids & their dogs around Civic Center, give a few dollars here & there when I have it, drape coats that I don’t wear anymore over people trying to sleep on cold San Francisco nights – but it’s never enough. I know there is so much more I could do – but it requires a car. There’s no way around it.

That was a year and seven months ago. I haven’t been able to get up and see my Mother since.
A few months ago she ordered somey jewelry from me, and I still haven’t seen them on her. Small things like that…

 

On September 5th is my 50th birthday, and right now my greatest dream is to be able to go pick My Mother up and bring her back down to the City so I can spend it with her. Have a small gathering of friends so they can finally meet her, this beautiful and amazing woman, and she could meet them – get out of her house and finally enjoy life a little bit. She deserves to.

I have a campaign on GoFundMe to help me get a car, which would not only allow me to get a little adventure and excitement into my mother’s life but help me get to shows & events to vend my jewelry & grow my business – as well increase the quality of my life in every way I can imagine. I could help so many more people…

http://www.gofundme.com/magickbus

If you can, please donate to it, share it to your friends on Facebook, Twitter, emails, and anywhere you can think of. Click on the link below, and please – give what you can. I would appreciate it with all my heart – and if, with your help, I am able to get a car – if you ever need a ride somewhere, *anywhere* – you got it.
THANK YOU!!!

http://www.gofundme.com/magickbus

To Go.

To live each day as if it has been stolen from death. To wake up every morning knowing that the possibilities are infinite, to release myself from the burden of “how” & the anguish that I encounter every day. To grab Ruby & drive to the Sea, to the mountains, to my mother. To raise my voice and shout at the sky “I am alive, I am wonderful, I am free. I AM.

To feel again the roads underneath me, always looking forward at what I can be, not what I was. The past always takes from the present. To again realize the physicality of the world has its boundaries only if my will is weak, only if I am afraid. To again accomplish the things that the normal person would think impossible.

To go. The wheel lightly held in my hands, the windows down & wind cleansing away the past. To wonder in anticipation and excitement what lies around the next corner, over the next crest. To keep going and discover where I end up. Always forward. For a driver, a wanderer, a dreamer, not having these things takes away part of the soul.

I wake up every morning and say “I wish.” I wish I could take myself and Ruby to the Sea, to the mountains. I wish I could get to events & trade shows to show people the things I can make when my hands meet my heart. I wish I could help people get to where they need to go, visit others who can’t go anywhere. I wish I could visit my Birth Mother, and finally get to know the woman who gave me this life. I wish I could make hers better. I wish I could get in my car and just go, leaving the unforgiving brutality of the sidewalks behind me and again follow the wind. Again follow my dreams.

I wish.

I will.

behind the smile

Where do you say what you can’t?

They tell you to be buoyant. They tell you to be enthusiastic, strong, confident in the words you write, the words you share and hope the world will see. When people visit or hear about my Kickstartercampaign, they don’t want to read my woes or worries.

For now, I put on a plastic smile like a McDonald’s server and don’t show the terror. For now I don’t say what I am truly feeling.
People don’t want their bubble popped. They want to feel confident in my project, to be lifted higher in the buoyancy of my words, as forced & manufactured as they may be at times.

I want to make them happy. I do care. I try to give them what they look for, and I hope by writing the words I will also be lifted.

I can’t write “If this campaign isn’t successful I’ll probably die before the book is finished”. As true as it is, threatening people to support my campaign probably wouldn’t go over too well, y’know?
Still, boiling in this head is the knowledge of what will happen if this campaign doesn’t succeed. The things that only I have known.

Until now.

THIS is where I can scream. Most the people I know on Facebook don’t take the time to read anything over a few sentences, regardless of what they say. Here I find a sanctuary, either real or imagined. On WordPress.
This is where we ALL can be real, be vulnerable. This is the shower we sing in.

My book is all I have anymore. All there is left in me to give. Due to the way this disease works and what it’s done to me I can’t really perform, can’t work. I don’t know the days I’ll be too exhausted or in too much pain to do more than pass the day in bed. Though those days are less, they still happen – and the rest are filled with such a growing hatred for the life I’ve been living since I was released from the hospice that I know with certainty that it’s something I can’t go on with.

The book is/was/will/would have given me a reason, a new breath, a purpose. To go back to living each day worried about getting herbs, to go back to each week with the only thing I can focus on is begging more friends for money to afford them is no life at all.

Every waking moment I’ve had the thought of how my life would change to keep me going, to soon be able to live a life that matters, to have a purpose for each breath.
To enjoy life. This is what the success of the campaign would offer me.

I have envisioned myself a thousand times or more waking up for the first time in years with the excitement of living, of having something I needed to do besides beg for more money. I would sit in random café’s writing, sipping coffee for the flavor and remembering with clarity the amazing life I have lived, smiling to myself as I lifted my head & turned to look out the window and knowing that I’m doing something good. That I once again had value.

I would sit at my Mother’s dining room table, facing the back yard wo I can watch Ruby play, run in and out of the door with the dog my mother and I would find for her in a rescue. She says she wants one and I could get it for her, help her take care of it. Help take care of my Mother. She would come home and ask me about my book, and I would share the stories I had written that day. She would get to know me and I her. We have 48 years to catch up on.

I would hold my head up, a smile glinting off the green in my eyes and hinting on my lips. People would know again. I would know myself again. This is why I am. This is me. I would be full and in love with life. It’s been so long, so long – but I woke, rang the bell above my grave and purpose came to dig me out. I sucked the fresh air into my lungs and this empty heart was filled.

They would read my stories, my life laid bare, naked for them to see and they would see themselves. They would find the parts, the lines that made them stop & look up with a sudden spark of understanding that it only took a decision, that the past didn’t matter and all the smallness they felt would be washed away in the ink of my words staining their face with a determined grin. They would mark the pages, underline sentences, read it again and maybe buy a copy for a friend or two. They would write to me and I wouldn’t feel so alone anymore.

This campaign needs to succeed. I need to write my life, give it away.

The heart inside of me is weary, vacant. I say I love people hoping that in the spoken words I will remember how. The smile on my face is an advance taken from when I can feel it again, when my heart fills with the knowledge that my life has changed from the barren desert it has become. Beg for money, get herbs. I’ve been kept alive by the possibility of the book, the knowledge that when the campaign succeeded it would be written. Take it away and I have nothing I need to live for and I need a reason.

I try to write with an empty heart and find all I can hear are the sucking noises like those a straw makes in a cup that’s been drained by a ravenous thirst.

Also haunting me is a thought.
In September 2010 I walked happy & full of energy into the hospice/respite that I was supposed to spend only three months in. Up until that moment I worked every day on my magazine, setting up interviews, making the site better, writing reviews and each morning stepping out of my motor-home with a smile. Even though my legs were bleeding, swollen, leaking the poisoned fluid my liver couldn’t process and in extreme pain, I still walked with purpose and pride to the café knowing there was something I was needed for.

I wasn’t able to work on CultureFlux in the hospice. I had been doing fine (relatively speaking) before I walked in, living in poor conditions with no money, food, and only enough water to wash my face in the morning – but I had a reason to go on. I loved being able to help other performers through the magazine and I loved giving them a voice.

Within a week my body began to shut down. My skin began falling off, hair coming out in clumps, and I was barely able to walk. One week.

What will happen if the campaign doesn’t succeed? When I don’t have the dream of writing & publishing the book to keep me alive anymore?

The herbs have kept me healthy, but it’s purpose that keeps me alive. From the edge of death in the hospice to the 4.5 years following, I had two things to live for: Finding my Birth Mother and giving this book to the world, hoping my life will inspire theirs.

I have found my Birth Mother.
For anyone who reads this, thank you for letting me vent, and don’t get me wrong – it’s not always like this inside my head. There are still many times when I realize it’s only the 6th day with 5x that more to go, and anything can happen. Hell, Oprah could see it and announce it to the world! It could go viral on Youtube! Anything! The most important thing I need to remember is to NEVER GIVE UP, even as much as I want to and as hard as it can be to dredge up the energy to go on. WE DO NOT GIVE UP.

http://bit.ly/NGGKickASS

I’m going to keep on fighting like hell for the success of this campaign, to make this dream a reality and again have my heart filled with purpose and passion.

It IS possible, and I’ve come from behind to achieve my goal more times than I can count. I mean hell – isn’t that what we do with EVERY dream we realize? We are WARRIORS, and this is what we do!

For anyone interested what all the above is about, here’s a link to my Kickstarter campaign! I wouldn’t mind at ALL if you supported it by making a pledge and/or shared it as far & wide as you can – you would be my new favorite person!
Just – don’t include the above, okay? (winky face)

And when you go there, please take a second to check out the update – I was *amazed* with what people said and want the world to see it too!

To all out there in WordPress land – thank you for being here for me. And thank you for not charging for my therapy.
Any comments of support or suggestions on how

 

 

 

More To Do

(I know – this is a bit long for the anti-attention society these days – but I would appreciate if you read it & got the *whole* story. Far too often I talk with people who only know a little – because they only read a little, yet think they know all that’s happening. Nearly the whole story *is* in these pages, but you only get it if you take a couple extra minutes to read the posts in their entirety.)

I first heard of it 15 months ago. Some amazing new drug, with almost no side effects and a 95% success rate of curing Hepatitis-C.

This was a far cry from the Interferon therapy that we – John (my doctor) Val, my Hep-C advocate & I – tried a few years ago, long before the 18 months I spent in the hospice. That was one of the worst nightmares I have gone through with any drug – not only effecting me physically, but as an added bonus some very serious thoughts of cracking the head open of anyone walking too slow in front of me… and frequently of suicide.
I had given up on you. All of you.

I used to wonder how long it would take someone to find me in my motorhome, if anyone would even notice I was dead. None of my “friends” ever called or checked in just to say hello, and my thinking was twisted to feeling as if I already was dead – it was difficult to find any reason not to make it just a little more real. At least the pain in my heart would likely be gone…
Thankfully, after three straight months of this they weren’t getting the results the wanted, and I was taken off the Interferon – otherwise it would have been another year & three months, and deep inside, I knew that I wasn’t strong enough to make it through. Every time it entered my mind, ending everything made so much more sense. If they were too busy to call, they didn’t have the right to miss me… but I couldn’t let John & Val down. They had cared so much over the years, tried so hard – and now it was time to try again.

After 6 months of battle with the insurance companies, I was finally authorized to try this new drug, Harvoni. Six months, one pill a day, and I made them swear – minimal side effects.

They were true to their word.

After six months on Harvoni and another three to make certain it was effective, I got my final blood tests back this past Wednesday – and I am officially cured of Hepatitis-C.
When John called to tell me the news, I didn’t have the heart to tell him what I really feel – that this is an empty victory. That the damage has been done. Being cured of Hep-C at this point means nearly nothing. While the virus caused the problems, they are their own entity. Hep-C was the gun – but the bullet caused the destruction.

I still need to take the herbs daily, still need to watch my diet & eat the best things possible – but now there is a new fight, a new goal. One Western Medicine says isn’t possible – but Western medicine also calls me a “miracle” for coming out the other side of the hell I went through, and should be dead.

I’m alive because *you* didn’t give up on me.

I’m not a miracle more than anyone else is – I just chose to believe that I WOULD live – and now, I choose to believe that I WILL reverse the cirrhosis, and have a healthy liver. No ascites, edema – and when I accomplish that, I’ll be able to inspire others to know that it IS possible – and show them how *I* did it. Even if what I do doesn’t work for them, at least they will know that it is possible – and if they let me, I intend to be there for them as LIVING proof. As I didn’t have anything like that, they will already have an advantage over me, and because of that, I am ecstatic.

But at least for now, I still need your help. You’ve kept me alive this long, and because of you (& that “being alive thing) I was able to finally find my Birth Mother – and now, the book is in high gear and I’m fucking THRILLED.

Thanks to a dear friend in Amsterdam (who I have never met – yet) I was able to afford some critical things I needed for the creation of the Kickstarter, help building an author website, and of course, herbs & good food – *even* one of the most important things for my spirit, which was getting out and being around friends and a trip to visit my Mother.

Now, I need *your* help again, if you can. If you’re still willing, if you want to see just how far I can take this. I am GOING to reverse the cirrhosis – but I need the specific herbs to do that with.

If you can – please help. My paypal is ksea@culturefluxmagazine – and I will be grateful for anything to help me achieve this – to conquer the final thing that they say I can’t.

Thank you again, & again.

I love you.

~ Casey

Lifeblood

Sooo… yeah.
I guess it’s about that time, isn’t it? I’ve been bad at keeping up in my online journal for the past… amount of time. I should do that/this before it gets out of hand, and there’s so much to say that nothing is said at all. Gots to feed the veuyerlits. (Hmm… Vueyerlits? Nope, not a word – or, at least wasn’t until now. Vueyerlit {n} def: One who more or less kinda closely follows (when they have time) the life of another through their writing.

But I digress. Things & stuffs. They’ve been happening. First, lets get that health crap out of the way. In two (TWO!) days I go in to get my bloodwork done – and this is the one I’ve been busting my ass to make right. Eating all the proper foods, staying away from detrimental ones, taking twice the dose of the herbs I need that will help (have to – since my liver is pretty much one big internal scar, I don’t absorb things the way I “should”. (and this is perhaps one of the VERY few times I would be happy to conform to what I “should” do.)

I’ve done all I could, spent nearly every dollar (except the $10 for Bernie & a bit for Isa A Shisha) on things that would help raise my platelets, red & white cells, & iron. All for surgery on my navel, which I have a CRAZY irrational phobia of other people touching – much less hacking away at. (What the HELL am I thinking? Just give me the manual and a scalpel. I’ll do this shit myself! Step away from my belly button, and no one gets hurt – got it?)

So now – money is gone, a few days left on food & the herbs – and countdown to 0:00, which is actually at 9:30am this Thursday, begins. There’s no reason to be nervous – at this point it’s either a pass or fail, essentially – and thanks to all of you, I’ve done all that I could. I’m sure as fuck going to HOPE, though – for whatever that’s worth… and continue with the mind/body meditations that got me out of the hospice, because I KNOW that helps – and hey, if any of you could slide some good energy my way, it sure would be appreciated… min’s running a tad low.

Oh, yeah. One other thing happens on that day, with the same bloodwork. It marks the 3 month limit they set… soooo, if the Hep-C virus is STILL undetectable, I am “officially” CURED OF FUCKING HEP-C!

Man. Talk about a fucking day – and I’m usually just barely getting out of bed at that time.

So, you may ask – what does being cured of Hep-C mean? Answer: Besides having the weight of possibly infecting someone else lifted off of my shoulders after fucking YEARS – not a damn thing, really. Well – the disease won’t progress, but fuck – at this point, where the hell does it have left to go? The damage – that’s been long, long since done.

BUT – NOW, I’m on a mission to figure out what herbs & concoctions can actually reverse cirrhosis. Western med can’t do it – but I’ll bet you my life (literally – haha?) that I can.

Aaaand – as if all of that wasn’t enough – there’s MORE! This is the good shit though – it’s easy, and short.
Three weeks after pulling the surprise attack on my Mother – she finally fucking called. Just to say hi, say she’s feeling better, getting around easier, and how am I?
After 10-11 months of not hearing a word from her, even through my birthday, the visit worked – and I owe it all to Kitty, who drove all the way from Sacramento to pick me up and take me another 3 hours North.

I put her pictures up again.

And yeah, there’s more – there always is, isn’t there? Even, at the rare times, where the outside is relatively calm – the mind never rests.
I fucking love it for that… but that’s for another time.

Maybe tomorrow.
Until again, I love you – and thank you for keeping me alive for all of this.

One last: and strangely enough, it’s actually an original kSea quote – I looked!

“Never let logic get in the way of your dreams.”

I fucking love you.

 

Show me.

 

Kitty’s incessant diatribe on the way up was able to keep me out of my head for the most part, not giving me a chance to dwell on what I would say to her, how to prepare myself for every reaction possible – from breaking down in tears to opening the front door solely to spit in my face and give me the finger through the door window as she turned & walked away with her finger still held above her head.

The drive was exquisite once we got onto CA 128, the final 45 mile stretch to her house along twisted mountain roads, trees & pastures everywhere and occasionally following a small river on the right. In some places, the trees stretched to meet in the middle of the road creating a canopy, and though I had driven this road to my mother’s house three times earlier, seeing and admiring the same things – this time I looked at it as if they were protecting me, hugging me and saying “whatever happens, it will be all-right – one way or another.
A subtle smile lifted my lips. I know, but I had forgotten for a moment. Thank you for reminding me.

What frightened me the most was the possibility that she wouldn’t be there. Kitty had driven all the way from Sacramento to do this for me when he noticed that no one else was offering – & it pissed him off. (though that is not *at all* why I wrote the posts & I don’t think I even implied it) & the largest fear I harbored was – what if we got there, and she wasn’t home? What if there were no answers found, what if the 12 hour trip for him was just to leave a note on her door?

As we pulled into the dirt driveway, I noticed her car there, the lights in the living room on. She was home. Ohshit. Here I go.

I walked slowly, willing my feet to take each step and trying not to think of anything. Whatever happens – well, that’s how it’s supposed to be… but damnit, ‘Verse – you’ve already made me strong enough, haven’t you? I mean – what the HELL do you have planned for my future if I need to be even stronger?

I could see her through the clear glass in her door – breaking crackers as she tried to spread cheese on them, and looking terrifyingly frail & weak. I waited what felt like an eternity before I knocked (though it was probably only about 30 seconds) and she turned towards the door, squinting. No lights on outside, I knew she could only see a reflection. She told me to come in…

Hey, ma… Surprise?

I walked over to her chair & crouched down in front of her. “So. What the fuck?”

We hashed it out over the hour – I did my best to try and make sure she knew how her lack of contact confused me, how much it ripped apart my fucking insides not knowing if she just decided to bag up her puppy & throw him in the river, or if it was something on her end. Something that was inside her keeping her from answering my messages or letters.
I could see she was in horrible shape – barely able to walk, had fallen twice in the past few weeks – hell, we even had matching black eyes. It hurt as I looked at her, how feeble she was, how fragile. I want to fix that. I want to fix everything for her.

She told me that was a large part of it – she had gone into a depression, hating getting older, and as the time increased it became more & more difficult to call or write…

I couldn’t help but softly chastise her, reminding her that she’s not the only player in this, and that she was being selfish as hell. I kept looking into her eyes, searching for something – I don’t know what. Maybe just comfort, understanding…

Most of the conversation was mundane talk about each others health, about my book, about my brother’s girlfriends good & bad. I don’t give a damn about my brother’s girlfriends… and me being me, I told her that. This moment was about us and what happened – and how it was going to be changed.
I gave her a pass this time – told her that it all begins again, right now and that she had better fucking call me – frequently.

And then, it was time to go. Kitty needed to make it back to Sacramento, I had to get back to Ruby.

I would like to feel more confident that something changed, that she will call, will write… but I’ll only know that in time. It will be even a greater time before I can trust her, before I begin taking my walls down again.

She slowly stood up from her chair, and we shared a long hug. I looked again into her eyes when we separated… and I think I saw whatever it was I was looking for, before I turned & walked out the door – looking back once as I shut it behind me.

The trip up there was more than necessary, and much of the pain inside was laid to rest inside of me – but not all.

We’ll see what happens.

answers

This is what it has come to. this is what needs to be done – and I’m fucking terrified… but I can’t let that stop me.

Dressed, drinking my mate’, a smoothie, taking all the herbs and trying to breathe. Trying not to think of what I will say, and trusting that the right words will come. The heart can’t be scripted.

It’s been set up, arranged, the best possibility of a time to catch her at home… and it’s happening.
A friend is driving down from Sacramento, grabbing my ass, and then we make the 2.5 hour trip up to Philo, where I surprise my mother on her doorstep.

I haven’t heard from her in over 10 months – I’ve left 30 or more messages, sent three letters… and still, no word from her.

What hurt the most was that there wasn’t even a birthday card sent. I mean fuck – I would have been fine if it were just completely void of words… just SOMETHING. Something… from her.
A heart-ripping contrast to only two years before, when she sent 7 birthday cards, each saying a little something.

I’m terrified… but this is something that needs to be done. The longer it sits inside of me, the more potent the poison becomes. All I want to know is one thing… why? What do you need? (Okay, two.)
Just… tell me to stay, or go away again… this time, forever. I’ll respect whatever you want. After all, saying goodbye was the very first thing you taught me, remember? Of course you do. It’s the very first thing I learned; having your smell, your heartbeat, your voice and everything that was peace & comfort ripped away from me as they took me from your arms.

You made me stronger than you realize, mom. I know what alone means better than most everyone – and I have done well.

I did the one thing I intended to do, which was live long enough to meet you.

I just didn’t expect you to be so wonderful.
I didn’t expect… to love you.

So, today, hopefully, something will be understood. I’ll do whatever you wish – just tell me.
I am, after & through it all – your first-born. I am your son… and even if I never see you again after today – I always will be.
At least nothing or no one can EVER take that away from me.

Not this time

I took them down today.

Each day as I sat at my computer desk, I looked up & there she was – there we were, smiling as if we had both won the impossible lottery & holding each other tight. It was the first time we had met, & I remember her thin fingers around me, her thin sinewy arms pulling me in tighter as if she was afraid to let me go again. Neither of us had a choice the first time she let go.
I was happy to stay, my arms saying the same things that hers did, never wanting to let go. This time, I had a choice. I had strength. We both had a choice.

Yet just as before, the choice needed to be made by both of us. It couldn’t work otherwise.

It has now been over 10 months since I last heard from her, and as the days & weeks progressed the images that I had of the first photos of us on nearly every wall in my apartment began to diminish in the joy they once brought me. My heart grew darker when I caught them in my gaze & I found myself quickly turning my eyes away if I happened to accidentally catch one in my sight.

This morning, I cleared my walls of any images of us. I wish I could say it was cleansing, that I felt better once it was done – but it only brought more anger & sorrow, raised the questions I still have again – the questions that were only met in silence… and I can’t help but wonder, just as I did every day as a child and nearly every day after that… what is wrong with me?
Perhaps something else I’ll never have the answer for…

all I know is that they never stay – but I always keep the pictures. This time however, I’m not fucking giving up so easily. Whatever may be wrong with me, I’m better than the way I’m being treated by her – and after searching for her for 25 years, after all I’ve been through – I deserve some goddamn answers.
If I had a car I would be on her doorstep within the next few days demanding them – I don’t give a fuck if it isn’t “fair” to her. She doesn’t get to pull this shit….. but as it is without a car, all I can do is send unanswered letters.
I fucking hate feeling helpless.

I then go online and the first thing I read is of David Bowie’s passing… and there is nothing left to say.

in silent screams

I leave one message for her, then another after a few days, a week… then twenty, thirty over the months. After a short while I find I’m talking to her answering machine, having almost conversations, telling it what I’ve been up to, how my day was, my week. It’s silent as I tell it that I think I’m getting better, that I wish she could meet some of the amazing people who are helping to keep me alive…

but it’s never her.

It must be around eight months now, maybe nine since I’ve heard my Mother’s voice – or heard from her at all. There’s been some amazing news that I told her answering machine; I’ve met my Blood Father with whom, on that fated New Years Eve of ’66/’67, she created me. The last time we talked, when he & I were only barely beginning to plan it, I asked her how she felt about me meeting him, & she said she was completely cool with it – “He’s a really sweet man.”, She said. He is… I was in & out of the hospital, been cured of Hep-C.
My Birthday has long since come & gone. The day she watched as I took my first breath… the day that only after we met meant anything to me slid by without a word from her.

I went to a small party which only by coincidence was the same day – dusted off & put on the well-practiced smile that hides everything else churning & twisting beneath the surface so that no one knew & it didn’t dampen the moods of my friends.
Hell, over this lifetime its gotten to the point where even I believe the mask I wear for those moments,,, until I get home, check the mailbox and again find it empty.

Maybe everything is broken, and she’s not getting any of my messages. Maybe she doesn’t check them. Maybe it is just too much for her and she has left me with nothing but silence, confusion, – and far too few beautiful memories of the times we had together… just like the others.
Maybe I did something wrong.

Maybe… this was a mistake. Maybe there was something past the smile that I never saw, the few times I was able to get up there to see her. An uncertainty, a fear…
Maybe I planted myself in her life too quickly and grew up too fast in the 47 years since she last saw me, one day a baby fresh from her womb, and the next, a man who has already lived a full life that she wasn’t allowed to be a part of.
Maybe, I did something wrong.

Maybe… I’m broken.

I’ve sent two letters now, another one will arrive for her shortly after thanksgiving. I’m thinking of sending a stamped & addressed envelope in this one. Maybe with a note to me with multiple choice answers.

Hi Casey!
Great to get your letters. I’m doing a)great b)pretty good c) busy, and I/I’m a)VERY sorry b) insanely busy with work c) have been feeling kind of down, but/and meant to write/call…

My ½ sister – her daughter, who I talk to about mom every month or so when we go to the archery range or dog park says not to worry; that maybe mom is feeling bad because she wasn’t able to be here for me, and she’s been a bit depressed lately anyways, not really being able to get around due to her recent hip transplants, or….or….

If I had a car I would have been up there long ago – maybe.
Probably. I understand the need & desire to be alone, but this has gotten to the point where it has just fucking become selfish.

It’s been 2 years & 6 days since the first time in my life I saw my Mother’s face. Could hold her in my arms. Could, at last, after 46 years… feel wanted. I found the heart that I belonged in.

I think of her every day, miss her – especially now, with the holidays here & looming, a time when we should be together – if even only through a phone call.

She always seemed so excited to see me in the few times I’ve been able to get up there.
Maybe she had a change of heart, and closed the part where I seemed to fit so perfectly before.
Maybe there will be a beautiful letter in a plain white envelope waiting for me in my mailbox tomorrow.

I don’t know.
Her answering machine ain’t talking.

March 31st. 13 Days. The Final (& first) Step….

About This Project

This book has been hard fought for. It was first requested over 7 years ago, but I knew then it was far from what it could become.

I had NO idea that it could become this.
From nearly dying twice during an 18 month hospital stay to finding my Birth Mother & Father after a 25 year search, ALONG with all the amazing (& sometimes hilarious) adventures along the way, its time has now come. It’s time to gather my 100’s of pages of blog entries and create something beautiful. Something that I have every intention of changing the world through.

Understandably, I’m incredibly excited to finally be able to write it for you – but it isn’t just a book. It’s a story for anyone, like me, who wants to change things.

It’s an unapologetic, pull-no-punches, honest, moving and inspiring story about taking control of your life and living YOUR dreams. If that involves making the reader a bit uncomfortable, so be it.

Though the specific journey written about in this story is solely mine, there is something for anyone who has ever questioned their direction in life, who has ever felt confused or defeated, and who has had to completely and undeniably trust their heart – because sometimes when you find yourself on the edge, the best thing you can do is just jump – and watch your wings unfold.

It is written for those who want to stop talking and start doing. People who want to CHOOSE, create their own story & feel the power they have over their lives.

This book will be my gift to those who believed in me when I forgot how to believe in myself.
It is my gift to those I have not yet met, reminding them that I believe in them.

This book is the incredible story of the amazing adventures over the past ten years of my life, and how I turned a mundane, unremarkable existence into a beautiful, useful & helpful life. A life that I am proud of… and the really cool thing is that I show YOU how to change your life, too.

I’m writing this book because I know it can help others. Because I know that it can change the world and there is no better feeling than helping someone else become the hero of their own story… and because it’s also the next dream on the list.

This isn’t going to be your normal “Let me tell you how it’s done” book – there are enough of those. This is going to be a friggin’ awe-inspiring, almost unbelievable story that comes with a boatload of inspiration to encourage YOU to look at your story, realize what’s possible, and decide to make YOUR dreams come true.

Stories. Our lives are constructed by countless stories, and the ones we choose literally create our world. How we look at ourselves, how we see others, how we make sense of this exquisite madness.

Stories remind of us what’s bigger – who we CAN be, and what we can do.

They give us the gift of wonder – something that far too many of us have forgotten. And stories are our pathways to change. This is nothing that you don’t already know. You just need to be reminded that it’s not only possible, but incredibly simple to start making your dreams come true.
After all – if
I can to it…

About Me!

Raw from the brink, his permeable life has affected me in such a way that I sometimes don’t believe kSea is fully human. He surpasses incomprehensible trials & discoveries to awaken us to how thin the veil sometimes is & what to do with it: origin, purpose, life & death itself. To be so aligned in spirit to tell the tales of unfathomable experiences is an inspiring gift to us all. This is a book that needs to be written, read, made into film. One can only guess at the darkest pages, the twists & turns as he finds illumination within.”

Pixie Spindel Photographer, PixieVision.com

 

kSea is what happens when you decide to live your dreams. His unstoppable passion to live is breathtaking, & I consider myself lucky to have shared the stage with such a passionate and beautiful soul. Every single rare second I spend with him is something I cherish.”
Wenzdai Atom-Morgan,Photographer

 

“kSea walks the walk, talks the talk, and is more amazing in ten seconds than most people are in a lifetime.”

Clara LaFrance co-performer, aerial dancer and instructor. Boston, MA / Oakland, CA

 

* * * * * * * * * * * * *

I wasn’t happy.

I mean, things weren’t “horrible” by any means, but my life certainly wasn’t heading anywhere amazing. I looked as far forward as I could, and couldn’t see anything changing. I couldn’t see living the life I wanted to live, not if I kept going the way I was – and the only way I saw that happening was if I made some changes… so I did.

Hey there! My name is Casey Porter. I’ll be writing this book for you.

This is the story of what happened when I decided to change things, and how my life exploded in pure amazing after that. I’m writing it because I’m absolutely certain that yours can, too.

Ten years ago, where this story begins, I was living an okay life. Not bad, not great, but like so many of us I felt like I could be doing something more. I SHOULD be doing something more.
The thing was that I wasn’t doing anything to make it happen. I was waiting for it to happen, and so far except for a few cool things that just became fond memories, it was pretty ordinary.
So I decided to do something about it. I decided to actually create my life, and honestly, I was terrified that my parents and the world were going to all get together and sing a chorus of “I Told You So”, but – I at least had to try.

Then something weird happened. My life started falling into place, and dreams started coming true. This is the story of not only what happened, but how I MADE it happen.

I’ve lived an incredible life from that time, beginning with working with Amanda Palmer & her band The Dresden Dolls, lived in a tent for four months helping Hurricane Katrina refugees, been a street performer, circus performer, award winning online magazine publisher, event producer and had achieved nearly ever dream I set out to make real. It wasn’t all roses & glory, but I was HAPPY, and for the very first time in my life, I was living a life I was proud of, and I was helping people.

I was making a difference, and although it was small, it had value.

Then four years ago, I suddenly found myself dying.

The Hep-C decided to wake up, and when it did, it meant business. My Dr. put me into a Hospice/Respite facility, and strangely it even got worse. I was dying, and all of their medicines and amazing care weren’t helping. I was watching myself decompose, and it was really messing with the dream I had to not die before I found my Birth Mother.

 

So I decided to live. 18 months later, after being called a ‘miracle’ by more than a few of the awesome crew who had watched & cared for me during that time, I did what I swore to myself I would do if I lived, and danced out of the front doors. On my feet… and a cane. Actually it was more of a shuffle than a dance, but I wasn’t too picky at the time, ya know?

 

So now, I’m writing an AWESOME book!

A book I truly believe will not only entertain you and make you laugh, but HELP, as well. A book that will change the world.

 

Although the details are my own, this is a story that will resonate with anyone who has felt a longing for something more, or who has faced fear of change. It will inspire, and most importantly – it will help.

Besides – isn’t it time to shake things up a bit?

And when the book is published?

That’s when it all begins.

How fortunate…

It’s been a long day.
A long, beautiful day, waking up at 7afuckingm for breakfast with a new friend and good conversation, to coming home and again fighting myself to write the script for the Kickstarter campaign video. It has now been rewritten approximately 735,956 times, and I still can’t get it right… but I’m getting closer.

It’s difficult to say everything I need to in a space of three minutes. Damn the attention span that the interweb has created.
Everything hinges on this video. If this project doesn’t get funded, sure, the book will be completed – but no one will see it, read it, and it won’t help anyone ever.

It’s been a long day. Tomorrow, I continue – but with added bonus! A friend is loaning her car to me indefinitely, so I’ll have transportation to the archery range, various dog parks, the Sea and most importantly, perhaps even my Mother if I can afford the fuel. I will. I need to get to her, check in, take care of her.
Get to know her.

I should sleep. Close the computer, open my current book, escape my mind and this frustration, and sleep – at least for a few hours. We do it all over again tomorrow – and I can’t wait.

Gods, what an exquisite life.

How fortunate we are…

A strange separation


vlcsnap-2014-12-04-21h38m30s235I look at old videos that I took while in Maitri. Things I haven’t seen since recording them, “footage” that no one else has seen, nor likely ever will unless you ask – and I don’t think you want to.
Better to hide behind the hint of truth that you already know.

These are the things I need to remember when I see other friends going through the hells that they do – so few of us tell the whole story. We’re afraid to.
We aren’t looking for sympathy, not looking for “oh, you poor thing…” We know. We know how you feel because we feel it more. We feel it more because we have that badge sewn into our flesh. Trust me, this is nothing against you… in fact, I hope you never do understand. I hope that you never have the capacity to empathize on that level. Your well wishes *are appreciated…

But what we truly seek is understanding. A person to cry *with* – not someone who cries for us. Only in those (thankfully) few people can we find some sort of twisted kinship.

Please don’t get me wrong – I love you. GODS, how I love you, for your caring, for your support, for the way that you *don’t* understand…

But I watch the videos, and even I, who have lived through that time, am disgusted at what I see… the decomposing flesh, the blood, the “fluid” that stained everything I slept in or wore, frequently soaking through the three layers of gauze & bandages to the pants Nd dripping on the floor of the cafe… And for the greater part of five years (the decomposition began *long* before I went into the hospice) – that was just another part of daily life. Brush my hair & remaining teeth, splash water on my face, peel the dressing and flesh from my legs try not to scratch because GODS they itched from the poison seeping out… and what do I need to do with CultureFlux that day?

THis seems like an entirely different life, the one I am living now… an entirely different person – finding my Birth Mother, being solid and “stable” enough to at least let a dog “think” that everything is wonderful… – even to the point of daring to offer my heart to another…

And remembering how wonderful that feels, even in the pain that it has brought.

Recently a friend said to let go of the past and focus on the future. I understood what was meant, and in many situations the person woulld be right – *IF* my past – this *particular* past were holding me back from myself and who I continue to become – but as I said to the person after a bit of thought – “In order to see where I am going, I cannot be blind to where I’ve been.”

We all go through what we need to, so we can give the lessons we have learned…

and I think I pretty much lost my train of thought… if there was one to begin with.

Perhaps the most important thing however – as grim as it may look to others, keep fucking smiling – and to everyone who *can’t* understand… please keep it that way.

You’ll find out enough about it in my book. That’s as close as I *EVER* want you to get…

I love you.

 

MomMe3