Accidental becoming

In the years that I’ve been contemplating, organizing, printing out reams of old blog posts and ripping them apart for the words that might matter, in all the years of such meticulous procrastination that I even impressed myself, I think that now, at long last, I am actually doing it, word by word.

I’m writing my damned book. From page one this time, instead of from any and all of the 600 or so pages of stories that I’ve compiled over this life, bouncing around in the absurdity of it with the intention of re-writing all the stories and them putting them together into some sort of intelligible masterpiece. This time, I’m starting at the beginning – and it seems to be working. It is working.

One thing I’ve realized though – there is no way that this could possibly be only one book.

I’ll write more in here later, as I’ve done my morning book-writing and need to get my ass in gear since I got a bit caught up in not wanting to stop, but seeing as that feeling – the feeling of not wanting to stop instead of trying to hook and rip every word out of my heart like they were swallowed by a fish – that’s a welcome sign.

I think I’m back.

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A little Everything

Another birthday quietly comes & goes with the slight disbelief & perhaps even small discontent that I made it another year.

I wake up late this morning, make my coffee, do the morning stretches to try to regain a scrap of the flexibility that, along with my strength, was eaten away during the 18 months that I spent in a hospital bed, and after I adjust the pillows climb back into bed, set the laptop on my lap & start to scratch words. I’ve found the bed is best – at least for the swelling in my legs. Keeps it down.

A conversation yesterday with a wonderful old friend & former lover about everything under our suns, and ending with tentative plans for a cross country trip in Spring – renting an RV and taking a few weeks to cross the country to her home in upstate New York. Likely plans. Almost definite plans.
I need to do something. Something that *means* something. The Kickstarter for my book crushed me as it fell to nothing but rubble of hopes, dreams & the plans I had which would have changed everything in my life, given me a purpose, a value.

I wonder why my life, my happiness depends so incredibly much on doing something, creating something, helping someone – I know that there are many who are content to live their lives in a mundane existence, and that’s all they seem to need. They seem to be happy – but that’s not me.  That’s not me.

I need to taste everything, experience the deepest pain and joy as I can, and truly feel PASSION, feel alive in this world, feel like I’m more than just another inconsequential pawn.
I need to breathe the fervent, blood red breath of life deep inside me, feel it fill my lungs, my heart, my soul, and match it with my own.
I need to swim to the deepest dark depths of the sea and feel at home there with creatures that understand that all I want to do is learn. Where are my fucking gills?

Where have I gone? Where is the music that I once danced to, the fevered rhythm of life? Have I fallen prey to my own sickness? Have I given up?

I can’t. I want to. I can’t. I’m tired. I can’t. I can’t.

Sometimes I think some of us live only to beat the odds. To be able to say “This is what I know.” And, just maybe, help someone else. Help them open their eyes, to see a little bit more beauty, to believe a little bit more in their dreams. To see how perfect we can at least make the world around us – or at the very least make it better.

I am not more courageous, not any more special than anyone else. I live in the same world.

I’ve just seen more of it than most – and because of that, in spite of that – I’m willing to keep fighting to make it a little bit better.

behind the smile

Where do you say what you can’t?

They tell you to be buoyant. They tell you to be enthusiastic, strong, confident in the words you write, the words you share and hope the world will see. When people visit or hear about my Kickstartercampaign, they don’t want to read my woes or worries.

For now, I put on a plastic smile like a McDonald’s server and don’t show the terror. For now I don’t say what I am truly feeling.
People don’t want their bubble popped. They want to feel confident in my project, to be lifted higher in the buoyancy of my words, as forced & manufactured as they may be at times.

I want to make them happy. I do care. I try to give them what they look for, and I hope by writing the words I will also be lifted.

I can’t write “If this campaign isn’t successful I’ll probably die before the book is finished”. As true as it is, threatening people to support my campaign probably wouldn’t go over too well, y’know?
Still, boiling in this head is the knowledge of what will happen if this campaign doesn’t succeed. The things that only I have known.

Until now.

THIS is where I can scream. Most the people I know on Facebook don’t take the time to read anything over a few sentences, regardless of what they say. Here I find a sanctuary, either real or imagined. On WordPress.
This is where we ALL can be real, be vulnerable. This is the shower we sing in.

My book is all I have anymore. All there is left in me to give. Due to the way this disease works and what it’s done to me I can’t really perform, can’t work. I don’t know the days I’ll be too exhausted or in too much pain to do more than pass the day in bed. Though those days are less, they still happen – and the rest are filled with such a growing hatred for the life I’ve been living since I was released from the hospice that I know with certainty that it’s something I can’t go on with.

The book is/was/will/would have given me a reason, a new breath, a purpose. To go back to living each day worried about getting herbs, to go back to each week with the only thing I can focus on is begging more friends for money to afford them is no life at all.

Every waking moment I’ve had the thought of how my life would change to keep me going, to soon be able to live a life that matters, to have a purpose for each breath.
To enjoy life. This is what the success of the campaign would offer me.

I have envisioned myself a thousand times or more waking up for the first time in years with the excitement of living, of having something I needed to do besides beg for more money. I would sit in random café’s writing, sipping coffee for the flavor and remembering with clarity the amazing life I have lived, smiling to myself as I lifted my head & turned to look out the window and knowing that I’m doing something good. That I once again had value.

I would sit at my Mother’s dining room table, facing the back yard wo I can watch Ruby play, run in and out of the door with the dog my mother and I would find for her in a rescue. She says she wants one and I could get it for her, help her take care of it. Help take care of my Mother. She would come home and ask me about my book, and I would share the stories I had written that day. She would get to know me and I her. We have 48 years to catch up on.

I would hold my head up, a smile glinting off the green in my eyes and hinting on my lips. People would know again. I would know myself again. This is why I am. This is me. I would be full and in love with life. It’s been so long, so long – but I woke, rang the bell above my grave and purpose came to dig me out. I sucked the fresh air into my lungs and this empty heart was filled.

They would read my stories, my life laid bare, naked for them to see and they would see themselves. They would find the parts, the lines that made them stop & look up with a sudden spark of understanding that it only took a decision, that the past didn’t matter and all the smallness they felt would be washed away in the ink of my words staining their face with a determined grin. They would mark the pages, underline sentences, read it again and maybe buy a copy for a friend or two. They would write to me and I wouldn’t feel so alone anymore.

This campaign needs to succeed. I need to write my life, give it away.

The heart inside of me is weary, vacant. I say I love people hoping that in the spoken words I will remember how. The smile on my face is an advance taken from when I can feel it again, when my heart fills with the knowledge that my life has changed from the barren desert it has become. Beg for money, get herbs. I’ve been kept alive by the possibility of the book, the knowledge that when the campaign succeeded it would be written. Take it away and I have nothing I need to live for and I need a reason.

I try to write with an empty heart and find all I can hear are the sucking noises like those a straw makes in a cup that’s been drained by a ravenous thirst.

Also haunting me is a thought.
In September 2010 I walked happy & full of energy into the hospice/respite that I was supposed to spend only three months in. Up until that moment I worked every day on my magazine, setting up interviews, making the site better, writing reviews and each morning stepping out of my motor-home with a smile. Even though my legs were bleeding, swollen, leaking the poisoned fluid my liver couldn’t process and in extreme pain, I still walked with purpose and pride to the café knowing there was something I was needed for.

I wasn’t able to work on CultureFlux in the hospice. I had been doing fine (relatively speaking) before I walked in, living in poor conditions with no money, food, and only enough water to wash my face in the morning – but I had a reason to go on. I loved being able to help other performers through the magazine and I loved giving them a voice.

Within a week my body began to shut down. My skin began falling off, hair coming out in clumps, and I was barely able to walk. One week.

What will happen if the campaign doesn’t succeed? When I don’t have the dream of writing & publishing the book to keep me alive anymore?

The herbs have kept me healthy, but it’s purpose that keeps me alive. From the edge of death in the hospice to the 4.5 years following, I had two things to live for: Finding my Birth Mother and giving this book to the world, hoping my life will inspire theirs.

I have found my Birth Mother.
For anyone who reads this, thank you for letting me vent, and don’t get me wrong – it’s not always like this inside my head. There are still many times when I realize it’s only the 6th day with 5x that more to go, and anything can happen. Hell, Oprah could see it and announce it to the world! It could go viral on Youtube! Anything! The most important thing I need to remember is to NEVER GIVE UP, even as much as I want to and as hard as it can be to dredge up the energy to go on. WE DO NOT GIVE UP.

http://bit.ly/NGGKickASS

I’m going to keep on fighting like hell for the success of this campaign, to make this dream a reality and again have my heart filled with purpose and passion.

It IS possible, and I’ve come from behind to achieve my goal more times than I can count. I mean hell – isn’t that what we do with EVERY dream we realize? We are WARRIORS, and this is what we do!

For anyone interested what all the above is about, here’s a link to my Kickstarter campaign! I wouldn’t mind at ALL if you supported it by making a pledge and/or shared it as far & wide as you can – you would be my new favorite person!
Just – don’t include the above, okay? (winky face)

And when you go there, please take a second to check out the update – I was *amazed* with what people said and want the world to see it too!

To all out there in WordPress land – thank you for being here for me. And thank you for not charging for my therapy.
Any comments of support or suggestions on how

 

 

 

Found Things of Ass

For those of you fortunate enough not to be on Facebook, they have this thing. Among their many other things. Things they have.
It’s basically a walk down the ‘ol memory lane, showing what you posted on this day back to the time you joined. When you think about it, it’s kind of creepy, but also strangely comforting in the way that it reminds me of an incredible, absolutely and frighteningly brilliant, beautiful woman I dated for a while in New York, who remembered EVERYTHING that I said or did. Usually it was used to point out how incredibly wrong I was, during one of our arguments, but on occasion she brought up things I did that were all snuggly and nice, as she rested her head on my chest in the rare times that one of us weren’t at school or work, and actually together. (I was working about 70 hours a week managing a kitchen, and she was in law school, working on the weekends. We had lovely dates that consisted mainly of collapsing in each others arms.)

Actually, this facebook thing is nothing like her – but at least writing about it prompted me to think of her again…

ANYWAY, today’s was something I posted on Facebook, and strangely enough not here. I do that a lot, but I think that soon I’ll completely reverse it and post things here, not on Facebook. You deserve them more.

but AS I WAS TRYING TO SAY, this popped up and I thought it was kind-of good and kind of funny, so I thought that I would share it with YOU, my wonderful and faithful blog readers. (Obviously, those who don’t read this will miss out on how beautiful & faithful and wonderful I think they are, so to those reading, just between you & me – you ROCK – but c’mon, comment more, okay? I like that shit. I get lonely – and it inspire me to write more, too…)

SO – here’s the thing I posted there but not here. It was posted when I was in a shitty respite place after an infection that made it pretty much impossible to walk due t the pain, for reference.
I knew that eventually I would get around to it. Thanks for your patience.

Nearing the end of day 9 of the sore-ass marathon. Gods, these beds are horribly uncomfortable. The different shifts and positions you find yourself in for a brief taste of comfort would make an interesting study – comparing the healing speed of someone laying in a 3rd rate hospital bed as compared to the bed I recently left at UCSF, which had so many positions you could swing the thing – pivoting feet up, head up, bringing knees up & down as well as of course your back position…

My theory is that the person in the bricksoft crap bed (up, down, back, legs, with a built-in ‘Sadism’ setting that is permanently on) will be the first one to heal, as the constant position changes and just sheer will and fight to finally get the hell out of this thing and tend to his poor, flattened ass.

In any case, those are the results of this particular one-person case study.

I’m doing what I can to heal – physically & mentally, and last night was able to sit on the edge of the bed for 30 whole secons before the pulsing & throbbing pain in my calf & ankle grew the point of sternly suggesting I bring the leg back to horizontal – but hell, it was progress, and I’ll be damned if I’m going to sit passively & wait for the healing to happen magically. (Actual Dr. care is surprisingly rare & brief.)

There’s a rumor floating around that I’ll be discharged early next week, ready or not. I’d rather be ready, or as ready as I can be.

I’m going to need to make some changes to my apartment when I get home – so be prepared for a purge of some things that you may like. I’ll be giving them away…

All in all, I’m mostly getting better – I always do & always will, but now it;s a race against time and my distaste for walkers.

Now, my ass has taken over my train of thought, so I must bid a temporary farewell.
Never thought my ass could hijack my brain, but then again, I’ve never given it much thought.

~ ~ ~ ~ ~

And then it goes into thanking people about helping me with the herbs I can’t afford to get myself due to the $200/month I get to try to survive on from disability… but you don’t want to hear about that, even if not having the herbs I needed WAS the reason I almost died because of the infection & would have prevented it in the first place.

Okay, back to work on my book project. It looks like the Kickstarter for it is actually gong to launch THIS WEEK – and I’m fucking terrified.

Have a beautiful Weekend – and keep dreaming! Love you guys…

OH! And if you could do the whole “Share, Follow & Like” thing… yeah. I really like that stuff, and would appreciate it. It gets lonely here sometimes.
Lots of times.

 

Too Far to Fail Now

Twelve years ago I jumped off a cliff & gave up everything to follow my dreams. I lost my apartment, my car, slept on couches & went hungry – but refused to go back. (As long as my dog was fed!)
Then, my wings unfolded.

I did things. I had incredible adventures. I helped people overcome their self-doubt & perform in front of hundreds of people. Volunteered for Katrina refugees, was one of the first street performers in New Orleans after The Storm. Created an award-winning magazine, produced events, did more things. Met amazing people.
Fell in love.

Then my body decided to die. My unrealized dreams & I disagreed with it, & The Battle was on… and now I’m writing a book about ALL of it.

This book is going to rock your world. Hopefully, it’s going to rock THE world.

It won’t likely be like anything you’ve read before. It’s an authentic, raw, funny, honest, moving and inspiring story of my past twelve years, and how I turned a mundane, unremarkable existence into a beautiful, useful & helpful life. A life that I am finally proud of…

This book is about remembering how to dance with life. About not letting life happen to you anymore, but making it happen foryou. It’s for the dreamers, the believers, those that thrive on the hope of fulfilling the potential we’ve all been blessed with.
And it’s about love.

I just need to get it out to the world.

I’ve come too far to fail.

My Kickstarter launches in 13 DAYS. July 6th, Wednesday.
I’ve crunched numbers, & I fear that I don’t have contact with enough people to succeed in reaching my goal.

I’m going to need your help – not only to change my life, but most importantly inspire others to live theirs.

LET’S CHANGE THE WORLD!

Sign up on my new site – save time & get updates you would otherwise miss! (No flooding – promise.)

www.kseaflux.com

LOVE YOU.

back in.

 

It’s hard for me to accept. Impossible to foresee what the outcome will be.

Either all I have worked for comes to fruition and my life changes entirely, or… it doesn’t.

Like the 1st letter I sent to the person who, after searching for 25 years, I knew was my birth mother, and the wait after that. Like fighting so hard and so long to make a dream come true that the final act of jumping into the unknown is the only direction to go anymore, I need to take a deep breath, and believe.

It’s time to let go.

Let go of nearly all of the control I had, and just do my best to aim away from the rocks and trees as I soar past them, faster than I’ve become familiar with over the years of lying immobile in a hospital bed and then my own, planning for this time as life passed me by.

It’s time to join life again. To jump back in the game.

It’s getting closer. It’s what I have worked so hard for. It’s what I have studied far too much for – and I’m terrified. I need to remember how to love being afraid, because I *sure* as hell have forgotten – and I recall not that long ago when being afraid, when doing something I had NO idea how to do was like a drug for me – a euphoria. Where the hell did that person go?
I need to do some digging around inside of me & find him again. Maybe he’s just sleeping – feeling unloved and under used.

This will light a fire under his ass.

Very soon, it comes to the point where I have to release this to the world, and see if they approve. See if they are interested enough in me enough to support my project, and hope that they are.

Will they see me? Do they want to know me?

Will they love me?

Sure, I’m frightened – but I also believe that it’s time to light a fire under MY ass, and which-ever way this goes – in some way, it will be successful.

a day begins

 

I wake up early this morning, finally home & in my own bed after spending three days & nights at a friend’s beautiful home, watching & caring for their dog. Ruby & I had a wonderful time, but their dog, a Weimaraner, is brilliant, hyper, & completely insane. Needless to say, it’s nice to be home. I wasn’t able to sleep much there.

As I lay in bed, I mentally go over my body to see how I feel today, make sure things are in more-or-less working order & that nothing has fallen off during the night. Besides the usual pain in my abdomen, all seems well – all my parts are there.

A brief meditation to slide myself into the day smoothly, then I go over the things I need to do. Errands… and The Website. Gods, it’s taken much longer than I had intended, but that’s what I get for being a ridiculously picky pain in the ass. A ridiculously picky pain in the ass who happens to change his mind a lot about the most miniscule of things… but I notice them, and they bother me, and if I *can* change them, I can’t not change them.

It’s a goddamn curse, but at long last, the site is almost ready enough for launch – the largest pre-Kickstarter step, which will help this project reach its financial goal & HAPPEN!

It’s become much more than just a book, though my book is, of course, the backbone of this project. With the addition of the website, I’ll be able to actually be there for people who need things: questions answered, encouragement, more inspiration – and nearly anything else they need.

I’ll be able to help again, in a much larger way; to feel useful, valued – and live a life that finally means something. A life that inspires others to live theirs. Inspires people to remember – and go after – the dreams they had, the person they wanted to be as a child, before they were forced to lose themselves in what society thought they should be.

This world needs more dreamers…

 

I consider beginning a new blog about the triumphs & trauma of creating a Kickstarter campaign for a self-publishing project – a brief prologue describing the hell & elation, unbridled excitement balanced with self-doubt & oppressive frustration it’s taken to get to this point, then continuing on with the same – and if/when the campaign reaches its goal, rolling into the compiling of all the blog posts, the pieces of memory that those set free in my mind, and actual writing of the book.

I know that it will help me, as for the past 33 years writing out the things bouncing around in my head in order to make some kind of sense of them has been the most effective therapy I’ve ever had – and I know I’ll probably need it.
Who knows. It just may help someone else too.

Yeah, maybe I’ll do that today – after I go over the website copy for the 1,436th time and do a couple more tweaks on the site itself. I swear – if it wasn’t for a guy in Peru who goes by Hawkthalas on Fiverr.com, who has been *amazing* at helping me with the site (& making his help affordable to even me!) – I’d be screwed. And so would the site…

So keep your ears open as it’s going to be launched *soon* and please, sign up! You’ll get special things if you do, and be the first round of people to know about all the other related things I have brewing in my noggin’ – spoken word pieces (maybe), exclusive rewards, and when it’s time, the most outrageous book-launch events I can get away with.

Okay – time to get my ass in gear & go pick up my disability check, pay the bills I need to and then figure out how I’m going to stretch $100-$150 for food & herbs for the remainder of the month.
My guess is that I’m not… but TODAY I’m getting a goddamn fancy coffee to enjoy at the dog park, at least.

Like if ya liked this, follow if you don’t want to miss the juicy stuff – and if you’re interested, keep your eyes out for my new blog!